Translate

Wednesday 9 April 2014

What have you got to be miserable about?

In some ways it is impossible to talk about an illness without indulging in what has been called, with some reason, disability top trumps.  How can one compare one disability with another after all?  Or one illness with another?  After all there was a huge fuss recently when, with the best intentions, a charity tried to compare one cancer to another.
To be honest its probably not worthwhile to even start.  After all what matters is that someone is in distress, not a sad, sick game of "Who's the gimpiest? ".  But we humans, or rather you humans and us horses, with our pack structures and our narrative imaginations seem, to need to rank everything.
On that basis my personal disability probably wouldn't make it into the top 100.  Don't get me wrong, i recently characterised it as:  (pardon the swears)

a pigfucking hyaenabitch arse elephant from hades with a cuntgiraffe chaser

but there are worse varieties even of Ehlers Danlos, and within my own variety I am one of the least afflicted. 
Why am i bothering about ranking systems?  Simply put, death.
I live in a country where euthanasia is technically legal.  But only in certain circumstances, the chief ones being that one has to have a terminal disease or a cancer, to qualify.  Now on one side I can see the point there, as probably those people are top of the list when it comes to suffering....or are they?  Seriously how does one gauge suffering?

I know that this is a touchy subject for many, and brings out a lot of make believe artists, but lets be clear here I am talking specifically about the right to die of people who can ask for it personally.  No coercion, no power of attorney.  I also emphatically do not want to promote the idea of topping oneself.  Its not a romantic statement.  It is a last resort.

But we live in a world where that last resort is effectively closed off to anyone who actually needs it.  I mean all due respect but if a cancer patient wants to kill themselves generally they should just substitute alternative medicine for the chemo and wait a year or two.  Some of us don't get off so lightly.

I do not understand, to be frank, why we do not allow anyone who asks for it a painless death.  Many people in chronic pain kill themselves, or try to.  Frankly they have a point.  Granted many suicides are irrational acts, carried out in the throes of great passion.  But some are rational choices.  Does anyone have the right to deny this exit?  My simple answer to that would be no.  Heck if I were in charge there would be combination drive-in suicide booths and pet food factories on industrial estates worldwide.

I may be a little liberal in my views there but it comes down to this for me...when life becomes an intolerable sentence do we really have the right to deny people parole?