It has been something of a day. When I woke I thought today had only Foal ferrying, taking Mr Hutt (shall we call him Salacious Crumb? He is actually rather nice) to the gp for a blood test and a bout of physio. Although i say physio what i mean is 2hrs of heavy gym work followed by a swim. This is needed to keep my eds under control. Or its the only weapon I have.
As Percy has pointed out specialists tell us zebrahim that we must be the fittest people we know. The problem is that to my boss and mrsinky and everyone else it looks like I am going to do something pleasant.
Let me address that for a bit. As Yukio Mishima once pointed out weight training is a form of meditation. Of course he was as mad as a benzedrine otter with a stoat up its bum but the point remains. So yes at its best it is...contemplative.
But with eds you have to concentrate soooo hard. Because a slight loss of form can send you to hospital. And of course everything you are doing is painful. Only the degree of pain guides your form.
So every day I am meant to do 2 hrs of painful stuff that is desperately important but which everyone else views as a luxury or a hobby.
After dropping off foal at the learnatorium I hot a call from Salacious saying he didnt need a lift. Result i thought. I shall buy new trainers at the discount store (pure class me) then go to David Lloyd and meditate.
Painfully.
Then the phone rang. Igor reporting and needing virtual fish heads.
Then the email went. Boss needs two reports today.
Then the skype went...
I spent all day working. Then had to rush to get foal. Luckily today I still havent crashed. If this had been Friday I would have ended in a and e.
So no physio.
This happens a lot. The damage is invisible but I am laying down wages of pain and immobility.
In good news cmht have contacted me. I now have a contact no for emergencies.
And an appointment with a nazgul to get treatment strategies on the 25th.
Tomorrow I have no appointments after foaldrop. Lets see how that one goes..eh?
So glad that CMHT communications now working after the wobbly start last week.
ReplyDeleteThanks also for the clear explanation about gym/exercise/eds - that really did help me to understand more about what you have to go through. I don't care if you don't want sympathy, you've got it from me anyway.
As ever, you take care now.
An appointment with a Nazgul to get treatment strategies on the 25th.
ReplyDeleteLOL, but also YAY.
Once you have built the Nine Riders out of LEGO, they don't seen quite so frightening! Though the Witch King of Agmar does still have a certain imaginative presence for me!
Love and best wishes for a good day today.
"Paparoula" (in colloquial Greek "little poppy")
Two hours everyday!? I'm unbearably smug if I stick to 3x45mins per week weight training. You're not getting any sympathy though, I'm sticking with irrational and rather unedifying envy.
ReplyDeleteenvy only appropriate if you also envy the disability....
Deleteto be fair a lot of the time I have to do the short one, like today. More later on that.
the short one is 20 mins elliptical, bench press situps, that thing thats the opposite of situps and looks like you are fucking a danish relaxer chair, pullups, dips, leg raise, soulder press and front shoulder raises.
you can do that in an hour if you really push it.